Showing posts with label leukemia. Show all posts
Showing posts with label leukemia. Show all posts

Wednesday, April 24, 2013

There's something extraordinary about the number 25: Lelia and Team In Training


Bob and Lelia with fellow TNT'ers at
the Rock 'n' Roll Virginia Half Marathon in 2003.
 This year, there's something quite extraordinary about the number twenty-five. Team In Training will commemorate it's 25th anniversary. Lelia Emery (Huber), one of the Georgia Chapter's first Honored Heroes, will celebrate her 25th birthday. And to perfectly complete this trio of events, Bob Huber, father of Lelia and avid LLS volunteer will complete his 25th Team In Training event. Just a coincidence? We think not.

In 1988, Bruce Cleland started a movement when he got a team together to train for the New York City Marathon and raise funds to support leukemia research. To honor his baby daughter Georgia's battle with leukemia, Bruce and his team of 38 runners raised $322,000 for LLS's Westchester/Hudson Valley Chapter. From this effort, Team In Training was born; now 25 years later, the program has prepared more than 570,000 athletes who have raised more than $1.32 billion to support blood cancer research and patient services.

Little Lelia during treatment.
One of the first Honored Heroes from the Georgia Chapter of TNT was Lelia Emery (Huber). Lelia was diagnosed with Acute Lymphocytic Leukemia in 1991, when she was just 2 ½ years old. She was hospitalized and immediately began receiving aggressive chemotherapy. Lelia's medication was called Methotrexate, which her family renamed "Pickle Juice" due to its green color. Finding ways to make treatment fun, Lelia also decided to name her chemo pump Seymour. Seven and a half years after being diagnosed, Lelia, ten years of age, was considered cancer free. Today, Lelia is a healthy young woman who will soon celebrate her 25th birthday. She lives in Columbus, Ohio and recently returned from a cruise where she and her husband enjoyed their first wedding anniversary.


As a Team Honored Hero, there were many TNT participants training in Lelia's honor. One day she looked at her dad, Bob Huber, and asked, "When are YOU going to do something in my honor?" That was all it took and Bob was officially signed up for his first Team In Training event, the Bermuda Marathon, in 1999. Since that year, Bob has completed twelve events as a participant and coached an additional twelve events for TNT. The North Face Endurance Challenge Series Georgia 50K will mark Bob's 25th event with TEAM. Who knew a simple request from a child would create such an amazing journey? Bob has also participated in LLS's Man & Woman of the Year campaign and is a dedicated LLS volunteer.

Here's a short Q&A with Lelia...

Little Lelia and Bob
Do you have any siblings?
Yes, a brother who is 3 ½ years younger. I was just getting my hair back when he was born.

What symptoms did you experience before you were diagnosed?

I was pale, lethargic and basically everything opposite of a typical two-year-old child. My parents took me to see their friend, who was an ER doctor. He suggested we go to the hospital immediately.

Describe your treatment protocol.

I spent the first month of treatment in the hospital. I was then released and continued to receive chemotherapy from home for about six months. I spiked a fever after each and every chemo treatment. I had 2 ½ years of treatment and 5 years of checkups every 3-6 months after being in remission. After 7 ½ years, I was considered cancer free and was told the chance of cancer returning was slim. I continued with extensive check-ups until I was 17 to ensure I did not experience side effects from the chemotherapy and treatments.

Since you were so young during treatment, what memories do you have from that time?

Two memories that stand out in my mind are my fear of receiving a spinal tap and running through the hospital hallways with a friend I met in the hospital.

Bob and Leila on her wedding day.
Do you have any suggestions for other children who have cancer and are going through treatment?

When I was young, I kept my cancer diagnosis a secret and only told my close friends. I suggest finding people that you can be yourself around. Don’t be afraid to be weird, angry, etc. Talk with a Child Life Specialist so they can get to know you. They can be some of your best help!

How did your dad get involved with Team In Training?

Being a TNT Honored Hero, there were so many people doing such great things for me. One day, I turned to my dad and asked when HE was going to do something for me!

Have you done a Team In Training event?

Yes, in 2003, when I was 14 years old, my dad and I did the Rock ‘n’ Roll Virginia Beach ½ Marathon. I had such a great time and it was so rewarding!

Where did you attend college?

I graduated from the University of Alabama and am now a Board Certified Music Therapist.

Do you feel your experiences growing up influenced your career choice?

Yes. I attended Camp Sunshine where I met many people who helped me in a variety of ways. I also had friends who worked with music therapists and I saw how much it helped them. I had an internship at a children’s hospital and an adolescent juvenile detention center. I always knew I wanted to give back!

Are you currently working?

Yes, I teach classes at Gymboree.

What are your hobbies?

I love playing with my 4-year-old dog, Grayson.

What are your goals for the next 10 years?

I would like to work as a music therapist. Have 1 or 2 children and I would love to do another TNT event.

Monday, April 1, 2013

Team Purple Spotlight: TNT Staff, Jennie Ellis, goes back to Cali...as a PARTICIPANT!

The ladies here at Team In Training do not hesitate to go above and beyond for LLS. We recently caught up with TNT Campaign Coordinator, Jennie Ellis, to discuss her walk (or rather, run) on the wild side as she embraces her inner participant and trains for the Rock 'N' Roll San Diego Marathon, taking place this June. With a strong athletic background and her mind on the mission, Jennie trains and fundraises for a cure. Watch out San Diego!


Jennie Ellis and other TNT staff and support staff are all smiles at
the Publix Georgia Marathon & Half Marathon 2013 finishing tent.
(Left to right: Aileen Bleach, Roberta McCunney,
Carey Garrett, Kimberly Williams, and Jennie Ellis)
What is your athletic background? Have you ever done one of these events before?

Growing up, I was always involved in some sort of sport/activity. You name it, I did it. However, I was heavily involved in competitive swimming for many years and ran cross country in high school. I have participated in several 5K’s and 10K’s, but I have never completed a marathon or half marathon before. So San Diego will be my first marathon experience!

Have you ever fundraised before? Are you nervous? 

This is my first experience with fundraising. While I have helped others fundraise, this will be the first time I am doing it on my own. It is a little nerve wracking, but mostly I am excited by the challenge and the opportunity to further support the LLS mission.

What motivated you to sign up?

My aunt, Kimberly Williams, is a coach with TNT. She and her husband Ken have participated in many marathon/half marathon events with TEAM and have always encouraged me to sign up for one, but it never felt like the right time. When I first started working with TNT, I staffed our Atlanta Nike and Chicago marathon teams. I had the opportunity to travel to San Francisco with the Nike team and the entire event weekend was a huge inspiration to me. I was so proud of my participants, and so inspired and motivated by all they had accomplished. I knew I wanted that feeling, so I decided to sign up for San Diego.

How long have you been with LLS?

I have kind of run the gamut with our LLS campaigns! I began working for LLS part time in May of 2011 as a recruiter on the Light The Night campaign, then received another part time position as a Campaign Assistant for our Special Events Department before starting to work full time with Team In Training in May 2012. I have really enjoyed learning the aspects of our different campaigns at LLS and am loving working for TNT.

What is your favorite aspect of being a TNT participant?

The thing I enjoy most is getting to see this campaign from the other side, the participant side. It really helps to know what the campaign is all about, why it is so special to our participants, and what makes them keep coming back. You get the opportunity to meet such amazing people and to hear their stories. It is definitely what keeps me going and what motivates me to go that extra mile when it seems impossible. While I have no personal connection to the mission, the participants and patients I have worked with are my inspiration. You know what you are doing is making a huge difference in people’s lives. I feel so fortunate to be able to give back to them by fundraising for LLS.

What goals do you have for the season?

Ideally, I’d like to finish the marathon in under 5 hours. However, I will be happy just to cross that finish line (preferably with my arms in the air and not a horrible look on my face). I have this fear that something will happen the day before the race, like I’ll break my toe or something. So finishing is a definite! Also, I would love to be able to raise at least $500 over my fundraising commitment, which is $3,200. The main goal here is to support the LLS mission so our patients can have access to better treatments and services, and we can eventually find a cure for these diseases. I know every dollar that is raised is critical, so the more that I can contribute towards that overarching goal, the better!

Way to go Jennie !
 

Friday, April 20, 2012

Running for their lives: How a Brookhaven couple is using running to improve their lives and the lives of those fighting blood cancer


Chris and Jen with their nephew and Honored Hero, Chase.
By this time of year, most New Year’s Resolutions have probably already been forgotten about. This is not the case for Brookhaven resident Jen Lesshafft. She is determined to follow through with her resolution and run at least one 5k a month.  She’s showing no signs of slowing down.  In fact, she’s gearing up for one of her most meaningful races to date –The 7th Annual Big Peach 5K Run/Walk to benefit The Leukemia & Lymphoma Society.
Her husband, Chris, has been running for a few years and she was getting tired just waiting for him at the finish line. As a way to stay fit and spend more time with her husband, Jen decided she was going to start running, too.

“I’ve played sports my whole life,” said Jen. “But I never really got into running.  I figured this could be a great way for me to stay healthy, all while spending time with my husband doing something he really enjoys.”


Chris and Jen at the Zoo Run Run 5K in Nashville
Chris and Jen set their resolutions. But that wasn’t enough for them. Not only are they shooting for one 5k a month, they also set a long-term goal to run at least one 5k in every state.  So far, they’ve completed races in Georgia, Tennessee, South Carolina and North Carolina. They’ll be repeating Georgia on May 5 when they run the Big Peach 5k.

“I think I’m most excited about this race,” Jen said while talking about the Big Peach 5k. “We’ve done some really cool races, like through the Nashville Zoo and along the beach in North Carolina, but knowing that the Big Peach 5k benefits such an amazing organization like The Leukemia & Lymphoma Society, I can’t help but be excited!”

Jen and Chris have had a personal mission connection to The Leukemia & Lymphoma Society since September 2008 when their nephew, Chase, was diagnosed with Pre-B Cell lymphocytic leukemia when he was only 18 months old. 

“I'm not a doctor but I want to do my part to help eliminate cancer. Whether it’s running a 5k or donating my time and resources, I’m going to do it,” Jen said. “Seeing what Chase has gone through pretty much his whole life is enough motivation for me to give back and help any way that I can.”

Jen and Chris have been training for the Big Peach 5k by running through their hilly Brookhaven neighborhood. Starting and finishing in Brookhaven, they have mapped out a 3.1 mile course that takes them all throughout neighborhood. Although the course can prove challenging to a new runner, Jen keeps pushing through.

“Running the entire course can be tough,” Jen admitted. “I just think of Chase and how strong he’s had to be the past 3 ½ years. No child, or person for that matter, should ever have to go through that. It gives me the strength I need to keep going.”

The Leukemia & Lymphoma Society created a program that makes it easy for people like Jen and Chris who want to run for a good cause. Team In Training is an endurance sports training program that benefits the Leukemia & Lymphoma Society. As an official Team In Training event, the Big Peach 5k offers participants the opportunity to give back, all while running a fun, 5k. To learn more about the Leukemia & Lymphoma Society’s Team in Training program, please visit the Team in Training website, www.teamintraining.org/ga.
The 7th Annual Big Peach 5K Run/Walk to benefit The Leukemia & Lymphoma Society takes place May 5th (Cinco de Mayo) at 8:00pm. Registration is now open. Participants can register on-line or by visiting any of the Metro Atlanta Big Peach Running Co. stores by Wednesday, May 2nd. All proceeds from the race go to benefit The Leukemia & Lymphoma Society.

Tuesday, February 14, 2012

Today is Not Just Valentine's Day by Alex Strickland


My name is Alex Strickland, and I am a survivor.When I was four years old, I was diagnosed with Acute Lymphocytic Leukemia. Luckily, within six months my wonderful doctors had battled my cancer into remission, but I then went through another two and a half years of maintenance chemo therapy.

At age five, I was admitted to the hospital with a bad case of chicken pox. Normally that wouldn't be so dangerous, but the chemo I was previously on had taken a harsh toll on my immune system. The doctors were unsure I would make it.

While I was in the hospital, I  had the privilege of being an Honored Hero for Team In Training's triathlon team. My best friend, who I went through chemo with, went to the triathlon with me and we cheered as his mother crossed the finish line.

My health did come back, and I'm alive and well today in large part to research funded by organizations like The Leukemia & Lymphoma Society.  So today I am carrying on what they've done for me. I've signed up for Team In Training myself, and in June I will be completing America's Most Beautiful Bike Ride, a 100 mile ride around Lake Tahoe, raising funds along the way to give back to the cause that I've benefited from.

So why is this post titled "Today is Not Just Valentine's Day" you ask? Well, today is something much bigger for me. February 14, 2000 was the day I took my last chemo treatment. Today I celebrate 12 years of health, 12 years of being a survivor, and 12 years since I put cancer behind me.

Join me in celebrating survivorship and the advances we've made in cancer research by donating $12 to LLS today to give today and tomorrow's kids even better treatments than what I had and to make cancer a thing of the past. That way we can focus on the little things, like Valentine's Day, instead. Happy Valentine's Day everyone!

TNT participant and Honored Teammate, Alex Strickland, is currently training and raising funds to participate in America's Most Beautiful Bike Ride in Lake Tahoe this June. Alex is a freshman at North Georgia College & State University studying pre-med and aspires to be a doctor.

Friday, November 19, 2010

I Can't Believe I Can Call Myself a Marathoner by Jenny Li

Jenny Li (left) and Sherrie Dougherty celebrate after crossing the finish line during the Nike Women's Marathon in San Francisco, Calif., on Sunday, October 17, 2010.
Photo: Laura Morton / Special to The Chronicle

As my breaths puff in and out of my tortured lungs, I think, "My legs are hurting; my shoulders are sore and this rain will not stop." But the people are cheering me on and I know, deep down that I will not give up. Because when I think back on the days I have trained for this moment—this fleeting, evanescent moment—I know that this was what I was meant to do, to finish this race strong.

To this day, I can’t believe I can call myself a marathoner—a title of less than one percent of the world's population can claim. Running the 26.2 miles of the Nike Women’s Marathon in San Francisco, California transformed me inside and out in four hours and thirty-nine minutes.

During the summer when I first began training, I was skeptical about my chances of finishing the race. When I was younger, my parents had insisted that I take tennis and karate lessons. This experience seemed to dilute my natural passion for sports. However, as I undertook the marathon training, I found that passion being created and my drive to succeed being restored. Now, I understand the difference between having to do something you are supposed to do and simply doing something that you love. No matter how hard, how painful, and how incredibly impossible that sport is, you will always want to keep going when you love it—when your heart is there. In all, it took six hard months of training, incredible guts, strict endurance, and swollen feet for me to reach the starting line.

Still, despite all I had done to prepare, I found it difficult to outrun my own vicious doubts. By the 13th mile, my lungs burning and my feet as heavy as ingots of lead, I began to question myself. Can I really do this? Will I be able to run another 13 miles? Suddenly, an image appeared in my head. It was of my close friend, Doris. She was a girl I had met in China who had suffered from Acute Promyelocytic Leukemia in 2009. She was the key reason I had signed up for the race. When I found out about Doris’ illness, I had felt so helpless. This terrible disease was slowly killing my friend in China while I was in Georgia unable to even see her. So as I struggled to confront my doubts, I realized that my race, my pain, and even my fears were not about me. They were about a friend I love and millions of other cancer victims. It was about the lives that were saved with the money that was donated by generous hearts. And with that, my feet and legs began to feel better—muscles pumping, heart throbbing with emotion. Ironically at that moment, my friend had saved me.

They say that a marathon is divided in halves: the first twenty miles and the last 6.2. Thoughts of Doris had revived my flagging spirits, but in the final 6.2 miles my flagging body became an issue all on its own. All I could do was keep moving. These miles were a blur. There were people who were cheering but I could not hear them. The volunteers handed out water but I could not even drink. The scene was moving fast and I did not know where I was going. My leaden head tilted up and the finish line was 50 feet away... 25 feet away... 10 feet away. Swoosh. All of sudden, I could hear cheering, but my eyes were still a blur. I touched my cheek to wipe off the sweat, only to realize there were tears streaming down my face.

The first thing I felt was pain. When you stop running, your muscles immediately condense and the lactic acid fills the muscles. I felt the pain in my legs first when I started walking. But then, it became worse. I felt the pain in my shoulders and in my feet and in my arms and in my back. For the first time, I felt the cold. And I felt the rain.

But even then, this whole experience from beginning to end was worth every ache in my entire body, every tear that was shed, and every bead of sweat that coursed down my face. In this unique and solitary moment I felt truly alive, filled with a universal energy. I knew that these moments of unimaginable bliss was what I wanted to experience again, and that I could infuse each moment of my life with this depth and power.

There is a saying that goes something like “Life is not measured by the number of breaths we take but by the moments that take our breaths away.” At that split second when I crossed that finish line, I genuinely and wholeheartedly experienced what that quote truly means. In those seconds, I knew I could do anything. I knew I could take on the world. And I knew that I would succeed.

Jenny Li joined thousands of other Team In Training participants from around the country at the 2010 Nike Women's Marathon to complete her first marathon. A High School Senior, Jenny wrote and submitted the essay above with her college applications. Great job Jenny and good luck!

The photo above appeared on www.sfgate.com on October 18, 2010 and is credited to Laura Morton.

Sunday, September 26, 2010

Ironman 70.3 Augusta: Deke & Brittany Share Their TNT Experience



Deke Copenhaver is the mayor of Augusta and is set to do his first Team In Training event at the 2010 Ironman 70.3 Augusta. Deke draws his inspiration for TNT from two local boys in Augusta who are both dealing with leukemia.


Brittany Banker, a TNT alumnus since running her first event in 2008, is a cancer survivor and single mom. Now also an assistant coach with the TEAM, Brittany shares her recent Ironman Louisville finish experience.

Wednesday, September 8, 2010

Open Letter to the TNT Fall Season Teams by Mitzi Jiles

Mitzi with her mom and dad at the Nike Women's Marathon
I can't believe that the Nike Women's Marathon is only six weeks away! What a season we have had so far! Friendships have been made, miles have been logged, money has been raised and we are hopefully only going to have cooler temps from here on out!. I just wanted to say with the race so close--Nike Team, it has been my honor to be your honored hero, THANK YOU! The encouragement, tenacity and support you all have graciously bestowed upon me has made me even more appreciative to be apart of the Team In Training family. So, with that, I wanted to share another aspect of why I am apart of TNT.


Yes, being a cancer survivor is a blessing. Yes, research for a cure is important. Yes, it's for those patients still fighting and those who lost their lives. But it's also so much more.

I've flashbacked to when I was sitting in the emergency room over 10 years ago waiting anxiously for my test results. At that moment I wish I could have been alone. I wish it could have just been me, the doctors nurses and anyone else who worked at the hospital, but it wasn't.

As I was in a daze being told terrible, change your life in a second, type of news.... there sat my mom.

Her eyes filled with tears, her heart breaking, her world crumbling...she had to witness the "you have cancer" diagnosis. The fact that she was a mere bystander to the words that I had Leukemia and that I could die in two weeks still haunts me! It's one of the most painful memories I have from my entire experience with cancer.

Parents should NEVER have to hear that the son/daughter they have raised, loved, and nurtured get diagnosed with a deadly disease. No matter how old they are.

When those words "you have cancer" came out of Dr. Morris's mouth I turned to my mom and I smiled. I told her that it was going to be ok. I was going to be fine and she had nothing to worry about. I became the parent. I comforted her. I was watching her watch me and all she saw was my life flashing before her eyes.

Why am I a part of Team In Training? Lance Armstrong said, it's because I have an obligation as a cancer survivor, but for me it's for the parents, siblings, family members, friends and caregivers. I hope there comes a day that they no longer have to hear someone they love is sick.

To all the members of Team In Training Fall events, what you have done this season has not only helped those who are sick but those caregivers who have been just as affected.... so, Thank You, Good Luck and GO TEAM!

Mitzi Jiles has been a part of Team In Training since 2007 and is doing her third TNT event with the 2010 Nike Women's Marathon, her first marathon. As an acute myeloid leukemia survivor for the last nine years, Mitzi is one of our Honored Heroes and motivates us all to continue the fight against cancer. Thank you Mitzi for the inspiration!

Friday, August 27, 2010

Honored Heroes, Jill, Dani and Lyndon Inspire

Below you will read several first hand perspectives from Team In Training Honored Heroes, Jill, Dani and Lyndon. The first is Jill's speech to a room full of TNT triathletes as they prepared to tackle the TriLatta Triathlon a couple of months ago. The second is an email from Dani to the Fall Season triathlon teams and the last is an email Lyndon sent to the Wilson 100 TNT cycling team. Prepare to be inspired! Thank you Jill, Dani and Lyndon.
Jill and Dani with the entire TriLatta triathlon team. Jill is cross legged
on the front left and Dani is in the white top in the front row.
Jill's Speech at the Tri-Latta Triathlon Inspiration Dinner on June 12, 2010

Welcome all the TNT Tri-athletes and athletic supporters (I’ve always wanted to say that!)

My name is Jill Powers and I’ve been invited to be your Honored Hero Speaker for this evening’s festivities. I’m a Non- Hodgkin’s Follicular Lymphoma Survivor and -- with your help -- I will continue to fight and one day I hope to live “Lymphoma Free” without the threat of the cancer coming back or developing another cancer as a side effect. Let’s just eradicate the crap out of cancer all together!!!

Let me share with you a little bit about what TNT means to me. I started participating in TNT events in late 2004 all because my sister, Annette, signed up for the Vancouver ½ Marathon in my honor shortly after I was diagnosed. This was one way she felt she could help me in my battle. I was so charged by her ambition, that I signed up as well for the Alaska ½ Marathon, which I completed in June 2005. Since then, I’ve become what I call “a TNT Junkie!” I can’t seem to get enough. It’s not about the events themselves or the challenges (ok maybe, a little,) but it’s about the mission, people, and family that I have made through my TNT journey – TNT just seems to be my kind of “Group Therapy.”

“Group Therapy” – you think I’m joking – but it’s no joke. TNT is the most positive place I could have put myself on this lifelong frustrating journey in the blood cancer battle. You see, my cancer is not curable. At least not today anyway. How many times will I have to make it to the treatment finish line? I have been through chemo and remission once…. I’ve already been there, done that and now I’m starting the journey all over again in July as a patient in a clinical trial.

I will be relocating to Houston, TX in July for 2-3 months for a clinical trial at MD Anderson Cancer Center and you can bet on it that TNT will be my “group therapy” while I am there. Keep your fingers crossed that it works. I’m doing my best to keep physically & mentally healthy so I won’t have to venture in to the land of a Bone Marrow Transplant any time soon.

You should be proud to know that the money you raise through TNT helps fund research and trials, like the one I will be doing.

So on the eve of this event , whether it’s your 1st or your 11th TNT event like me; be proud and hold your head up high (ok, not for the swim part unless spotting) and know that you are making a difference in the lives of many!! You may not have had a personal connection to blood cancers when you started your training 4 months ago, but I’m sure that’s changed now.

It always amazes me to hear the stories people share when you reach out to do something good for others. You learn so much not only about yourself, but about how small the world is and how connected we all are. Cancer is not picky; no one escapes this life without knowing someone who has it or is personally affected by it.

People tell me they are amazed by my attitude towards life & my cancer - let me tell you I’ve got “TUDE” and I’m sure that’s what gets me through sometimes or maybe it’s my stubbornness, but I’m going to kick cancer’s butt as many times as it takes! No pity party here! Move on with life, live it, take chances, and make the most of it. Just LIVE and enjoy the little moments as well as the big ones. And all of you help make it possible for me to have this attitude.

I am proud to call all of you teammates & more importantly teammates in the battle against Blood Cancers. I wish I would be able to see all of your shiny/salty faces as you cross the finish line tomorrow, but I think it will be the other way around; you will probably be waiting for me. As my Georgia Team can attest, I am pretty pokey. But I will finish with a smile on my face and a hug for each and every one of you! You are all rockstars and heroes in my book!!

Tomorrow morning as you get up early, correction-very early, enjoy every minute of the day! Even when you think you can’t go any further and want to give up – don’t – you’ve trained for this – you’ll get to the finish line!!

Again, many thanks for the millions of us whose lives are touched by the struggle with cancer. Every stroke you swim, mile you ride & run or walk tomorrow is one mile closer to a cure!!!!

One final note – I would like to personally dedicate my event tomorrow to Dani, the Georgia Chapter’s Honored Hero. She joins us this weekend with her family to celebrate life. Dani is currently in treatment and I wish her a long and happy life filled with love, laughter, health and only good memories of her cancer journey. Yes, there can and will be good, if not great memories.

Now go out there and kick some TNT Butt!!! GO TEAM!!!! ~ Jill

Dani's email sent to the TNT Triathlon Team on August 25, 2010

After the first week of classes, I am trying to go back to regular life.  After practically falling apart in my first class, and actually falling apart in my second class; I am beginning to realize that this year really happened.  I guess I thought that I may wake up some day and Ashton Kutcher would be there with a megaphone and a trucker hat telling me I had been punked.  Alas, I don’t think I will find Ashton in my bedroom any morning (damn) and this really did happen. 

I drove home from class, wondering if I had any business trying to help anyone considering my own current state of hysteria.  If a graduate level class and a simple assignment to state my fears can produce such emotional unrest perhaps I am only suited to cook dinner and knit blankets.  I daydream about becoming a Stepford wife, with no emotions, then remember that they all had long, beautiful hair and quickly rejoin reality. 

I am realizing there is no going back after cancer.  It is now a part of who I am.  It has changed the way I view the world and interact with people. I am no longer the same person I was, I am trying so hard to get back to who I was, to move on and away from this year, but perhaps I just cannot.  Perhaps, I am a different person now and I simply have to pick up and move forward, discovering myself all over again. 

I find myself getting angry; did I really spend a year kicking this thing physically just to turn around and have to process things emotionally?  Can we just be done?  I am sick of the word cancer, I am sick of cancer.  I am angry that my family and the family of so many others have been put through hell.  I am angry that I will forever live in fear that the cancer may come back in me or in someone I love.  I am scared that there will never be a day that cancer does not touch for the rest of my life.  I AM OVER CANCER.

Then I hear my beautiful daughter shrill from behind me and I am reminded, ever so quickly, what this is truly all about.  I am one of the lucky ones who get to be sick of cancer.  I am one of the lucky ones who have survived thus far.    Each breath I take is a gift, each day I have is another victory.

So I have traded my combat boots for flip-flops and I move about the day, trying to navigate the best I can.  I am reminded that I am no different from any other person on this planet; I do the best I can each day with the information and strength I have at the moment.

I guess, for all who are willing, I am welcoming you to join me on the journey back to life.  The journey after a cancer free diagnosis but not quite free of cancer.  The beauty of this process is that it is so cathartic for me; the fact that someone reads it is simply frosting.  Writing this stuff out, processing through and then sending it out to the universe (or cyberspace) is the most healing thing I do.  Thanks for loving us and praying for us!  We love each of you! ~ Dani

Lyndon
Lyndon's email sent to the TNT Wilson 100 Cycling Team on August 23, 2010

I'll be getting my second bone marrow transplant on Tuesday, August 31. The good news is, my 100 days of seclusion while my immune system rebuilds will be over in December, in plenty of time for the next cycling season. 100 days, like 100 miles, will go by one at a time, except for those parts where I'm totally in a daze and don't even realize how far I've gone. I think you know you're a cyclist when the last 20 miles get to be the bittersweet conclusion of months of preparation with the team instead of "Oh my god I'm not sure I can go 20 more miles..."

I'm not usually one to make a fuss, but if you want to follow my progress, look me up on http://www.caringbridge.com/. Where it says "Visit a website," enter my name, lsilloway.

To those who are riding this weekend's Century, may the wind be at your back, the gravel off the road, the dogs behind their fences, and the Gatorade cool and sweet like southern iced tea at a fine BBQ joint with red plaid plastic tablecloths. ~ Lyndon

Monday, July 19, 2010

What Can Happen in Five Years? by Mallory Chandler


I've always heard the saying that a lot can happen in five years. So I started thinking, what all can happen in five years? Well, it takes nine months for a baby to be born. You can start and finish college; well at least that's the theory anyway. In my case, you can graduate from college, move to a new city, train for and complete two half-marathons and a marathon with Team In Training. Oh yeah and be in the middle of training for your second marathon. It seems like I've done a lot in those five years and to be honest, I'm not sure where the time has gone. However, in five years, I still have not learned how to come to grips with losing a friend to a blood cancer.

You see, I recently celebrated my seventh year off chemo anniversary in April. While going through chemo, I met a lot of kids who were also fighting the terrible c-word. One of the people that I met who was also battling cancer, Todd, ended up becoming my best friend. I met Todd when I was fifteen and he was sixteen. He was diagnosed in May of 2000 and I was diagnosed in September of 2000. We both had ALL (acute lymphocytic leukemia). As Forest Gump would say, we went together like peas and carrots. We were completely opposite but yet, it worked. I was always really feisty (and still am); Todd was more laid back and would roll with the punches. I was an athlete and he was in the band. I was (and still am) an Ole Miss fan; he was an Auburn fan (which in the state of Alabama, things like that can make or break a friendship). The one main thing we had in common was that we each needed a friend, someone who knew what the other was going through and would take each other’s mind off of the reality of what was happening. You see, we didn't need sympathy, we needed normalcy and we provided that for each other.

It took us each about three years to finish chemo. I completed my chemo regiment before graduating high school, but Todd had to enter his freshman year at Auburn still on treatments. I finished with relatively few setbacks. Todd had a harder time. I was lucky enough to have never relapsed. Todd relapsed and needed a bone marrow transplant. He traveled to Boston for his transplant and I remember being a freshman in college and spending my weekends talking to him over the computer so he could have some company, so-to-speak. I remember one Saturday in particular, we talked for twelve straight hours, with only a few breaks to go to the bathroom or get something to eat. Needless to say, he was my best friend and I loved him dearly.

After he finished his transplant, he was allowed to come back to Alabama and start his sophomore year of college. He had decided to transfer to a school closer to his Alabama doctors, so he chose to enroll at Samford University in Birmingham. I was really excited about this, because I too was going to be a sophomore at Samford. That summer, I had to decide to stay at Samford or transfer to another school. I made the painful decision to transfer, but I knew that one day, the stars would finally align and we would find our way back to each other. Todd stayed right on track though and enrolled for the Fall 2004 semester. At least he was right on track until he hit another detour. A few months into the semester, he relapsed for the second time. This was not a good thing. The leukemia started showing up all over his body, not just his blood. I saw him a couple of times during this go-round and we would talk periodically. I just knew he was going to be OK. He would bounce back just like he did the previous two times.

Unfortunately, five years ago today, July 19th, Todd passed away. To say that I was devastated was an understatement. How could this happen? We were Mal and Todd, The Dynamic Chemo Duo. We were supposed to grow old together and conquer the world, because if we could conquer cancer, then the only thing left was the world. But I guess it wasn't in the cards for us. I had to learn a hard lesson in life, that sometimes things don’t go the way you plan.

Sometimes I catch myself wondering what could have been and how different the past five years would have been if he were still around. Last Wednesday, I really started thinking about how much I missed him. I called my mom and she told me the one thing I needed to hear. She told me that Todd would be mad at me for being sad and dwelling on it. And she's right. He would've wanted me to take that pain and sadness and turn it in to something good. I have finally started to realize that just because Todd's not here to conquer the world with me, I can still conquer it. People who find out that I run half-marathons and marathons ask me why I run. I usually tell them that I run because I can. What I should probably say is that I run because Todd can't, but more importantly, because I can and that's what he would want me to do.

Mallory Chandler celebrated her seventh year anniversary as a survivor at the 2010 Country Music Marathon. She is now set to do the 2010 Chicago Marathon with Team In Training. Mallory, thank you for continuing to inspire us all! You, Todd and so many others are why we do what we do.

Friday, February 19, 2010

Letter to the TEAM by Gretchen Owens

To My Paris Marathon Teammates:

Today is a very special day for me and my family. Many of you know why my Dad and I are involved with TNT…and it all started 21 years ago today.

On February 17, 1989 my sister, Leslie, lost her valiant fight against leukemia. She was only sick 4 short months – diagnosed with Acute Lymphoblastic Leukemia in October 1988. When she was diagnosed, the doctors gave her a less than 4% chance of surviving. 4%. Pretty bleak odds. After several rounds of chemotherapy here at Piedmont Hospital, the doctors decided she needed more aggressive treatment in the form of a bone marrow transplant. My Mom, Dad, brother and I all got tested to see if were a match. I was secretly hoping and praying that I would be the one. Unfortunately, none of us was an exact match, but my Dad was the closest. At that time, there were no bone marrow databases like there are today. And, only a few hospitals would perform a non-matching transplant. The best hospital was said to be Fred Hutchinson Cancer Center in Seattle. Mom, Dad and Leslie went there for the transplant in late January. After a few weeks of giving platelets and taking care of my sister, my Mom was getting very weak so I went to Seattle so that I could give my platelets. The radiation and chemo that Leslie was given in preparation for the transplant did incredible damage to her body. Things went from bad to worse and about a week after my arrival, Leslie died.

Fast forward 21 years. Today, there are cure rates upwards of 90% and for some even 100%. Bone marrow databases exist and people can be matched with strangers who are an exact match. So much progress has been made! And much of this progress is directly attributable to the funds raised by Team In Training.

I wanted to share this story with you as a reminder that what we do has and does make a difference…and will continue to make a difference until we find a cure. You are all heroes in my book and to those who are fighting leukemia today. It takes a special person to do something for the greater good. And personally, I want to say thank you for being a part of our team. It’s easy to get wrapped up with training, fundraising, and just day to day life and not focus on the reason we all are doing what we do. As you continue to work on your fundraising, don’t forget that EVERY dollar you raise is getting us one step closer to finding a cure. And, as you are running up the hill this weekend on Johnson’s Ferry thinking to yourself…man, this is one tough hill - remember why we do what we do….and that YOU are making a difference. I am so honored to be your Coach and a part of this great team!!

"The most beautiful people we have known are those who have known defeat, known suffering, known struggle, known loss, and have found their way out of the depths. These persons have an appreciation, a sensitivity, and an understanding of life that fills them with compassion, gentleness, and a deep loving concern. Beautiful people do not just happen." ~ Elisabeth Kubler-Ross

Gretchen Owens is a long-time Team In Training Georgia Chapter alumnus, mentor and coach. This season she is leading a team to France for the Marathon de Paris. The letter above was sent to her teammates on February 17, 2010. The accompanying photo shows Gretchen at the far right with some of her 2009 Kiawah Marathon teammates. Thank you Gretchen for sharing and reminding us all why we do what we do.

Friday, January 8, 2010

Mallory's Celebrating 7 Years as a Survivor by Lori Rasmussen

I think Mallory Chandler is pretty awesome. Anyone who knows me is probably rolling their eyes and thinking, “Lori, you think most everyone is awesome.” You’re right! I do! But let me tell you a little more and let’s see if maybe you agree with me.

Mallory is planning to run her first full marathon in April of this year. She is training with The Leukemia & Lymphoma Society’s Team In Training group and trying to raise $2000 to help fight blood cancer. Even more spectacular is the date of this particular event. You see, Mallory is running The Country Music Marathon in Nashville Tennessee to help raise money to fight blood cancer on the 7th anniversary of completing chemotherapy for leukemia.

At 24, Mallory has faced more obstacles, and encountered more sadness than people twice her age. She’s suffered pain, fear, anger, and sadness as she battled leukemia. She made friends with fellow patients and watched them die. She’s wondered, “why me?” and yet lived on. As a parent of kids close to her age, I wept thinking of her parents watching their “baby” face such big things. There is a lot to her story…details she can tell you that make you laugh and cry within seconds. I can’t even begin to do justice to it, but I can say this—she is amazing and she is awesome!

Before being diagnosed with leukemia, she ran on the cross country team. She was pretty decent too—fast enough to be on the varsity team as a freshman! Running today can be disappointing to her. She doesn’t have her speed any more. That makes it hard to get out there and run. But she keeps going and is making good things happen from the bad. When I asked her why she ran, she didn’t sugar coat it: “I run because I can. And I run for my friends who didn’t make it.”

So, maybe I overdo it with my use of superlatives such as amazing and awesome, but once in awhile, I meet someone who is all those things and more. I think Mallory is one of those people.
Run on, Mallory. You are making things happen!

Support Mallory as she trains for the Country Music Marathon: http://pages.teamintraining.org/ga/cmc10/mchandler

Lori Rasmussen has been an enthusiastic TNT participant since 2007. She has participated in three half-marathons and is currently planning to attempt her first full marathon with TNT at the San Diego Rock ‘n’ Roll Marathon TEAM.